It has been three months since my mother moved in with us and I became her constant care taker. Some days it has been a struggle. Yes, I am struggling.
Struggling with watching my mother slowly lose herself.
Struggling with my lack of privacy.
Struggling with my exhaustion.
Struggling with my guilt.
Struggling with my anger.
But mostly? I am struggling with the feeling of abandonment. Three months ago my family insisted that we remove my mother from a bad environment. (For the record, I agreed that my sister needed a break and it was no longer the right living arrangement - for either of them for various reasons.) Everyone was right there when they made the decision. Everyone was right there offering themselves for whatever I would need.
But since then? Not so much.
I know she is MY mother. I know she didn't choose to have this disease but in this last week I have asked for help from four different family members and only one came through. My sister had someone over at her house every other day. (I do live an hour and a half away from everyone though.)
I miss my little family of three. I know I'll miss my mom when she's gone. It's a terrible catch-twenty-two.
But I still feel abandoned.
Edited to add: My mom has finally been approved for the Choices program. (A state program similar to hospice that gives patients nursing home placement while paying 100% of the bill.) We will be moving her into a home this weekend.
19 April 2012
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Sam, I'm so sorry, I can't even imagine how difficult this situation is for you. *hugs*
ReplyDeleteThanks for the support Alison!!
DeleteI'm sorry for what you are going through. It was very hard on my mom and me when we where taking care of my grandma before she passed away. Have you thought about Hospice? They pay for everything and the person get's 24/7 care. We eventually had to move my grandma there.
ReplyDeleteThanks for your suggestions!
DeleteOur hospice can refer you to homes they recommend (but you have to pay for the home) or they can provide free in-home care. On paper, in-home care sounds ideal. However we live in a teeny apartment and having nurses come in and out would make the situation more stressful for everyone. We decided their programs didn't work for our particular situation (my mom won't eat their provided meals etc.)
You are in a tough spot girly...I know this isn't easy. I could not do what you are doing!
ReplyDeleteI have to say, just from reading your blog and tweets, it's clear that you're handling this incredibly difficult situation far better than most would, myself included. Thoughts to you, mama.
ReplyDeleteWhen I was a kid, my Nana lived with us and I remember my Mom feeling the exact same way. I can't even imagine going through it with my own Mom...hang in there, sister.
ReplyDeleteIt is hard to give yourself to so many at once. The guilt is inevitable.
DeleteI'm so sorry and I understand--I really, truly do. I'm the oldest of 4 siblings and had a very similar experience to yours.
ReplyDeleteIt was a time of tremendous struggle and family turmoil, but now (years later) I'm very glad I took full care of my mom in the final year of her life.
I've never heard of the Choices program, but I'm so glad your mom was approved for it. You're a good person, Samantha, and a strong woman. You did the right thing. *hugs*
It's always a tough relationship between siblings when you have to make tough choices together about your parents. I'm sorry you've had a similar experience.
DeleteOh, Sam. I'm so sorry that you've fallen on some tough times. Here's hoping you find solace and peace in your friends and in your beautiful family!
ReplyDeleteThank you! I miss seeing you in my reader!
DeleteI'm so sorry. I understand that it feels you are so alone. I saw the edit today--I'm hoping your mom will get the help she needs and that you'll be able to catch your breath with this new arrangement.
ReplyDeleteSam, I know it's difficult to adjust to having someone else, even if it's our mum, to be in the same abode after all the privacy we had. I couldn't imagine what you are going through. But be strong and I hope your mum adjusts well in the home.
ReplyDelete